Support a Great Cause

We've enjoyed camping, out of cell service, all weekend...but now I'm back to spread more Childhood Cancer Awareness. Here is a great opportunity to get fantastically cute photos of your child AND support an amazing cause. Nicole Walker, of Nicole Walker Photography, is using her time and her talents to make a difference for kids with cancer by supporting The Ronan Thompson Foundation. Local friends, book your session today! Thank you Nicole!

 



Catching Up

When Nate finished the worst of his treatments last year, I turned my concentration to building our new life.  That hasn't left much time for blogging.  In all honestly, it was pretty difficult for me to acclimate back into society (I'm still not there yet, and may never be)...but that's a post for another time.  It's still very important for me to share Nate's story.  I have been in touch with several families going through treatment who have told me how much reading Nate's blog has helped them and how much HOPE his story provides.  I also want to continue to document Nate's story for him to have when he gets older.  I have been pretty good at keeping Facebook updated...it just seemed more manageable for me, but I know everyone doesn't have Facebook.  So, I just copied all of my Facebook posts from Nate's page to the blog, to catch the blog up to today (it's a LOT of posts).  I will continue to copy Facebook posts to the blog and will write some blog posts when I feel the need to write.  Thank you all for loving and keeping up with our super boy!

Please Share



Please take a second to share this video and ask your friends to share it too. They are donating $2 for every share, up to $50,000, to Alex's Lemonade Stand for pediatric cancer research. That's real money, for real research, to help real children like Nate...and it literally takes only one second. Please and thank you!

 http://u.nm.com/H4ACFB

 



Best Friends

This photo haunts me. I look at this little girl and I see Ellie. I pray every day that Ellie will never have to grow up without her best friend and partner in crime. What this family is facing is beyond tragic. The Truth 365 is working... to spread awareness outside our "childhood cancer circle", which is the first step in making some real changes. Like their Facebook page and visit their website to find out how you can help.

 

 

Three days after his Virginia memorial service, 13-year-old Gavin Rupp was laid to rest tonight in Ohio. 6-year-old Abby and 11-year-old Ian had to say their final goodbyes to their big brother and best friend. This is WRONG on so many leve...ls but this is happening all over the country and the world 365 days a year. The general public and our elected leaders are blissfully unaware that so many kids are dying but we plan to change that. Our campaign is gearing up for Phase Two and we need your help. Please make a commitment today to stand up for Gavin and all children with cancer. Will you be their voice? Will you help us spread awareness? Will you help us advocate for more federal funding for childhood cancer research? Will you fight with us every day, every month and every year until their are cures and safer, less toxic treatments? These kids need you. Don't let them down.

The Rupp family also needs you. Please say a special prayer for Sandy, Chris, Ian and Abby tonight as they say goodbye to sweet Gavin, one of the nicest kids we ever knew. We are dedicated to continuing Gavin's battle for the benefit of all children who face this horrific disease.

Here is a link to Gavin's Caringbridge:
www.caringbridge.org/visit/gavinrupp1

 

 

 

 

Because of Super Nate

Please find 5 minutes today to watch the video in the link. The trial they talk about is the very same trial that Nate is participating in. This trial, and all the others like it that are making true advances in this disease, is not funded by the government, by pharmaceutical companies, or the American Cancer Society. It is only possible because of the small, usually parent run, organizations like Because of Ezra. I don't know where we'd be without them and they need our help.

http://vimeo.com/72366651



Action

This following link is a great post. I still believe in awareness because there are many people who are not aware, not truly aware of what childhood cancer is and the lack of funding...I wasn't. Awareness only gets us so far though, we have to turn the awareness into action. September is a great month for Childhood Cancer Awareness...we need to use the rest of the year for ACTION.

http://summerofthedragonfly.com/2013/09/01/awareness-what-a-bullshit-word/

Childhood Cancer Awareness Month

It's Childhood Cancer Awareness Month and the color is GOLD. Every day I will be sharing something about childhood cancer (a statistic, a child, a story, a meme, how you can help, something). I know everyone reading this is probably already aware of Nate's story and how it has affected him and our family. So, I am asking a favor. Sometime this month, when I share something that resonates with you, PLEASE share it with your friends and ask them to do the same. You could even change your profile picture in support of the kids for all or part of the month. I'm only asking you to share ONE thing, but you can certainly share multiple or every day if you would like. The only way we are going to spread awareness is if we get beyond the small circle of people who are already aware and already care. Thank you!